This post is a little out of order, but who cares? Not like many folks are reading this anyway :)
As I thought - I failed the VEMP test. My decibel thresholds were 55 decibels (DB) on the right and 60DB on the left. Anything lower than 80DB is considered abnormal.
I honestly think they are lower than that - but it's been a while since I saw the screen and I've been known to be wrong :P
Anyway - my surgeon wasn't all that happy with the results. He wanted one ear to be worse than the other, so he knew which one to do. We discussed it and decided on trying the right ear.
I'm waiting for a surgery date - and Dr H said he's going to make a 3D model of my head so he knows where to work and what he's working with for the surgery.
____________
shhh....not so loud....
May 19, 2013
May 17, 2013
Dang!
Wow.
I just haven't been up to posting on here for a while.
I've got a quick update though.
In December 2012 I had another high resolution CT scan. In January 2013 I got confirmation that I do have bilateral Superior Canal Dehiscence Syndrome.
You can read about it here : Wikipedia Link
My otolaryngologist (what is that? click here) confirmed with me that I wanted to try surgery. I did confirm it, but was pretty nervous about it. Especially when he laid out the complications that could happen.
*Cerebral Spinal Fluid leak - fixable? yes... okay....
*Meningitis - treatable, so.. okay
*Deafness in the operated ear - not good, but... okay
*Stroke/blood clots - EEEEK?!? That doesn't sound good....
and these are just the really bad ones. There were more, but I can't remember them now. Story of my life these days...
Anyway - I was given a form and told that I had to have an x-ray, bloodwork, ecg, etc done. Once they had that paperwork, I'd go on a list for surgery and they "planned" to have it done in the next 3 months.
Thinking that the faster I did it - the faster it would go (HA!) I did the stuff right away at the end of January 2013.
It is now May 17, 2013 and I am still waiting for them to call me. When I called them at the end of the 3 month period, I was told that there was nothing more I could do. They would call me when my name came up.
Great. Hurry up and wait. Blech.
I'm still hoping to hear from them soon - but I'm really really glad that I didn't wait to go see HRB. If I had waited, I wouldn't have been able to see her before she goes to Europe. *sigh*
While I'm ecstatic for her - I'm sad for me. I'm going to miss her. But - since we both have Skype, I can at least see her once in a while, even if it's just on a screen.
And that's all I have the energy for.
____________
waiting for ..........
I just haven't been up to posting on here for a while.
I've got a quick update though.
In December 2012 I had another high resolution CT scan. In January 2013 I got confirmation that I do have bilateral Superior Canal Dehiscence Syndrome.
You can read about it here : Wikipedia Link
My otolaryngologist (what is that? click here) confirmed with me that I wanted to try surgery. I did confirm it, but was pretty nervous about it. Especially when he laid out the complications that could happen.
*Cerebral Spinal Fluid leak - fixable? yes... okay....
*Meningitis - treatable, so.. okay
*Deafness in the operated ear - not good, but... okay
*Stroke/blood clots - EEEEK?!? That doesn't sound good....
and these are just the really bad ones. There were more, but I can't remember them now. Story of my life these days...
Anyway - I was given a form and told that I had to have an x-ray, bloodwork, ecg, etc done. Once they had that paperwork, I'd go on a list for surgery and they "planned" to have it done in the next 3 months.
Thinking that the faster I did it - the faster it would go (HA!) I did the stuff right away at the end of January 2013.
It is now May 17, 2013 and I am still waiting for them to call me. When I called them at the end of the 3 month period, I was told that there was nothing more I could do. They would call me when my name came up.
Great. Hurry up and wait. Blech.
I'm still hoping to hear from them soon - but I'm really really glad that I didn't wait to go see HRB. If I had waited, I wouldn't have been able to see her before she goes to Europe. *sigh*
While I'm ecstatic for her - I'm sad for me. I'm going to miss her. But - since we both have Skype, I can at least see her once in a while, even if it's just on a screen.
And that's all I have the energy for.
____________
waiting for ..........
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